A 3-year-old American girl has a rapidly growing tumor right above her forehead pressing on her skull, causing her head to deform like a hippo’s head.
Kaydence Theriaut, 3 years old, and her triplets Taylor and Kaylin all have Congenital Crouzon Syndrome. This cruel disease caused the heads of the three little sisters to be deformed and ugly.
When Kaydence was 2 months old, her skull was deformed with no area for the brain to develop
Doctors say Crouzon Syndrome is a genetic syndrome that causes skull deformation and abnormal facial development. The cause of this syndrome is the premature fusion of some bones in the head and face area.
Although people with this syndrome still have normal intelligence and development, their heads can be deformed, distorted and their faces become ugly.
The malignant disease syndrome deformed Kaydence’s entire skull and face.
In addition, this syndrome also causes abnormal manifestations in the lower jaw, spine and hearing. Normally, if only one parent has this syndrome, there will be about a 50% risk of passing it on to the child.
Out of about 100,000 people, only 1.6 people have this disease and the cause is all genetic. Surgery to correct the shape of the skull or expand the skull in cases of narrow skull is the only treatment method.
Image of Kaydence’s deformed skull
Kaydence’s two younger siblings have a mild form of this syndrome, so their heads are only distorted and their faces are slightly deformed, so they have a relatively normal head and face shape after undergoing surgery when they were 18 years old. months old.
Most children with this syndrome have surgery when they are about 18 months old so they can live a normal life like other children.
Currently, Kaydence has a normal life with her siblings When Kaydence was just two months old, doctors performed emergency surgery on her to create space for her brain to develop.
About 3 months later, a team of experts performed an extremely complex surgery to correct the shape of Kaydence’s head.
Currently, after undergoing many surgeries, Kaydence and her two sisters can integrate into the lives of normal children.